Real Talk
You're frustrated. So are we.
While we work to change the system, sometimes you just need a place to vent.
This is that place.
Dismissed, oversimplified care
"I went to my primary care provider last week who told me my cholesterol was high and I need to take meds to lower it. When I asked if there's anything else I can do she said… 'you either go vegan or try meditating' That was it. That was the entire treatment plan."
Weight bias, dismissed
"I went to my doctor for a freaking ear infection, and the whole appointment turned into him lecturing me about losing weight... like, excuse me??? I’m no doctor, but how is that even related? Maybe if he’d explained the connection, it’d be one thing. What makes me most upset is how I didn’t stand up for myself. I sat there, didn't say a word and walked out with tears and antibiotics."
Minimized, insensitive response
"After sharing over a decade of my story (chronic inflammation, autoimmune issues, repeated hospital stays) my doctor looked at me and said, 'You’re lucky you’re still sitting here with us today.' Maybe it was meant as a joke? But sitting on Zoom in my living room I was just speechless. I don’t remember a single other thing from that appointment.
Rushed, lack of communication
"Went to a new endocrinologist and she gave me 5 mins of her time, barely looked at me and just ordered labs. Didn't explain what these labs were even for. And I was just frozen."
Fear & Anxiety
"I'm scared to go to the gynecologist. That's it. That's the post."
Invalidated, dismissed as a trend
"I don’t even know where to start with the shit I’ve been told by licensed providers. Anyone with endometriosis will resonate. One I’ll never forget: I couldn’t eat solid foods or have sex or exercise without immense pain, my abdomen was so bloated I looked six months pregnant, and my surgeon told me, 'endo belly is just an Instagram fad.'"
Medical gaslighting
"I went to the ER multiple times thinking it was appendicitis. The pain was that intense. Every time, I was told it was ‘just IBS’ and sent home. But I knew something wasn’t right. For seven years, I kept searching. When I was finally diagnosed with endometriosis, I broke down and cried. Not just from the relief of having a name for it but from the grief of all the years no one believed me."
System burnout, feeling stuck
"I’ve been told 'you’re depressed' for as long as I can remember. My psychiatrist keeps increasing my lexapro, but tbh I feel happy...just constantly tired. My psychiatrist sent me to an endocrinologist to check my thyroid and other levels, but everything came back 'normal'. I'm tired and stuck and don’t know what to do next."